ILD Support Groups
- Living Well With Interstitial Lung Disease
- Pulmonary Fibrosis Foundation Support Groups
- Family Caregiver Alliance
Resources for Specific ILDs
- Connective Tissue Disease-Associated ILD: (Dermatomyositis, Polymyositis, Mixed Connective Tissue Disease, Wegener's Granulomatosis, Sjӧgren's Syndrome, Scleroderma, Sarcoidosis, Rheumatoid Arthritis, Raynaud's Syndrome)
- American Autoimmune Related Diseases Association
- American College of Rheumatology Scleroderma Foundation
Familial Pulmonary Fibrosis
- National Jewish Health
- Christine Garcia, MD, PhD, University of Texas Southwestern Medical Center (800) 396-6270
Idiopathic Pulmonary Fibrosis (IPF)
Lymphangioleiomyomatosis (LAM)
Sarcoidosis
Medication Information
- Mayo Clinic Drugs and Supplements Information
- MedlinePlus Drugs, Supplements and Herbal Information
- Esbriet
- Ofev
Conditions Associated with ILD
Gastroesophageal Reflux Disease (GERD)
Pulmonary Hypertension
- American Heart Association: Information on pulmonary hypertension
- Pulmonary Hypertension Association
Sleep and Sleep Apnea
Smoking
ILD Symptoms and Complications
Anxiety and Depression
Deconditioning
Dyspnea (Shortness of Breath)
Hypoxemia and Supplemental Oxygen
- Emphysema Foundation for Our Right to Survive (focuses on COPD but provides useful information on oxygen equipment, traveling with oxygen, etc.)
Weight Loss or Gain
- Obesity Education Initiative, National Heart, Lung, and Blood Institute
- Weight Watchers
General Lung Health Information
- American Lung Association
- National Heart, Lung, and Blood Institute
- National Library of Medicine
- UpToDate.com
Familial Pulmonary Fibrosis, Telomeres, and Genetic Testing
Resources for Financial Hardship
- Caring Voice Coalition
- Medicaid Information
- National Rehabilitation Information Center
- NeedyMeds.org
- Partnership for Prescription Assistance
- Social Security Administration: Disability Benefits
- Social Security Administration: Employment Support Programs
Research Studies and Getting Involved
- ClinicalTrials.gov
- Foundation for Sarcoidosis Research
- Pulmonary Fibrosis Foundation
- Rare Diseases Clinical Research Network
- Scleroderma Foundation
- The LAM Foundation
- UCSF Interstitial Lung Disease Program Research
Lung Transplantation
Advance Care Planning
- End of Life Resources, AARP
- National Hospice and Palliative Care Organization
- Toolkit for Health Care Advance Planning, American Bar Association
Environment and ILD
- https://www.ready.gov/wildfires
- Centers for Disease Control and Prevention (CDC):
- U.S. Environmental Protection Agency (EPA):
- Current Conditions and Wildfire Tools
- Smoke Ready Toolbox for Wildfires (one-page flyer)
- Reduce Health Risks in Areas With Wildfire Smoke (one-page flyer)
- Using a mask if you must go outdoors (two-page flyer)
- Home air cleaners
- How Smoke from Fires Can Affect Your Health
- California EPA: Protecting Public Health from Home and Building Fire Ash
- DisasterAssistance.gov: Recovery help to receive disaster assistance
- For Health Professionals:
